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Majura Valley Bush Festival donates to FBIC

The Majura Valley Bush Festival has donated $10,000 to Friends of Brain Injured Children. To learn more about this amazing donation read Megan Doherty's article in the Canberra times.

Invitation to a fun day and great fundraising opportunity for FBIC - Sunday 30 April 2017

The Majura Valley Land Care Group has organised the inaugural Majura Valley Bush Festival on Sunday 30 April, 2017. They are very generously donating all money raised from a variety of rides on the day to FBIC so come along and encourage as many people as you can to come too!

They will have a display of the original vintage horse drawn carriages used in the Valley in years past, as well as whip cracking displays, wood chopping, farrier displays, farm animal petting for young children with Noah’s Ark, merry-go-round rides, hay rides, Aboriginal and other historical walks and talks, among other activities.

Important information:

All FBIC families are invited to attend the day free of charge as guests of the event.

If you wish to come please email Paul Dowden, paul.dowden@gmail.com, or call on 0402 552 209, and he will have your name added to guest list (this should be able to be arranged up until nearly the last minute), or email Mandy at fbiact@shout.org.au BY 6PM FRIDAY so passes can be arranged.

Social Event - Canberra Outlet Centre

FBIC Partnership with Canberra Outlet Centre  - 14 May 2017

   1) Mothers day shopping afternoon with personal stylist 

       -  Mothers day gift : Mums, grandparents are invited- Group of 10  

   2) Sunday afternoon fun at Monkey Mania- for FBIC families   

Thanks to Canberra outlet centre - free entry to the indoor playground                                     

Speech pathologist -Gail Bennell will be there to help the children communicate    Details will be available shortly!!

Workshops

 

 

Video self modelling workshop with Anthea Naylor.  Saturday 6th May from 9-6pm at the Shout Office

 

Sibling support workshop with Kate Strohm. Saturday 3rd June from 9am - 5 pm at the Shout Office

 

Kate came from a medical science background and moved into health promotion and journalism.  In 1999, she established Siblings Australia which focuses on supporting siblings of children/adults living with disability or chronic illness.

Her first book, Siblings, was published in Australia in 2002

Ollie

Posted in
Oliver with parents(Mark and Kimberley), Wirginia Maixner and Simon Harvey
at the 500th epilepsy surgery celebrations.
Oliver Terrell with parents (Mark and Kimberley), Wirginia Maixner and Simon Harvey at the 500th epilepsy surgery celebrations.

Oliver Terrell is 6 years old, and introduces himself saying "I've been on Catalyst", as if it's quite common for a 6 year old to have had their brain surgery filmed for a science show.

Ollie's story began with a stroke at birth and a diagnosis of cerebral palsy (hemiplegia affecting his right hand side). He had seizures at birth but didn't develop epilepsy till aged 3 at which point his behaviour and concentration deteriorated. His family struggled to find someone who could correctly diagnose and effectively treat him until travelling to Melbourne to meet neurologist Simon Harvey at the Royal Children's hospital. Being treated in Melbourne by Simon Harvey and neurosurgeon Wirginia Maixner was life changing. Wirginia Maixner cut the scar tissue from Ollie's stroke out of his brain to remove the cause of his epilepsy, using trachtography to pin-point important functions such as movement and vision to preserve as much function as possible.

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